Monday, December 17, 2012
A Christmas I Can Never Forget.
Twenty three years ago, we had lost hope. With a dying baby, I was facing my other children with empty stockings. Our cupboards were bare. We were becoming a statistic of families in crisis, our daughter denied insurance and we had to fall into poverty to cover her hundreds of thousands of dollars in medical bills. I prayed for a miracle. This is our miracle story of HOPE and a yet unknown Santa or Santa's who gave us the catalyst to change the course of our lives. We are incredibly blessed by the miracles of that evening. I can never forget.
Our Tiny Titan never gave up and neither did we.
Christmas is a time of giving and miracles. Miracles are meant to be shared .In this days of sadness and tragedy in the world and with so many struggling with joblessness, uncertainty of health care in our country, and others facing life changing medical conditions. We all need to believe in good and caring. I knew I needed to share it for FREE to offer HOPE and move hearts. I have arranged with my Publisher, Better Endings, New Beginnings to give it away.
Tiny Titan, One Small Gift on Kindle Electronic Download. Beginning tomorrow Tuesday December 18 through Saturday December 22 for FREE.
Chapter 9, "Christmas" has been told through major media over the years, landing in Women's magazines, media many Christmas feature stories and even the other side of the world when Nippon TV recreated the Christmas story for the December 12, 2007 episode of the World's Most Amazing Stories. It is our gift to share the events of that Christmas forward.
If you read no other part of the book, take a few minutes and read Chapter nine.I have also posted the Christmas Chapter here on my blog for anyone to read when they have time.
Chapter 9 Christmas from Tiny Titan, One Small Gift
To learn more about Noonan Syndrome
Have a very blessed Holiday season from our family to yours.
Ann Yurcek
Tiny Titan, One Small Gift is Part One of the Printed Copy of Tiny Titan, Journey of Hope available at Amazon.com
Mom's Choice Award Winner-Best Adult Non-Fiction
5 Star Dove Award
Http://www.annyurcek.com
Sunday, December 16, 2012
Miracles Are Meant To Be Shared, Our Christmas Miracle
The Free Christmas Chapter From Tiny Titan, One Small Gift
Download Tiny Titan, One Small Gift for Kindle here .
Available for FREE at Amazon.com
from Tuesday, December l8 through Saturday, December 22, 2012
Our gift to you this Holiday season.
Chapter 9
Christmas
I sunk into despair. The holiday was fast approaching and Christmas was the last thing on our minds with Becca critically ill in the PICU and everyone else sick too. There was no money for gifts, and there was no time to buy or make anything. I was sick, tired and depressed over the circumstances we found ourselves in. If the phone rang, I was afraid to answer it because it might carry the news that Becca was worsening or no longer here. The phone was a constant reminder of trouble. It rang with bill collectors waiting for money. It rang when medical personnel had more dreaded news or another crisis for Becca. My emotions rose and fell like tidal waves, up, up, up and down, down, down. I tried not to think; not thinking was how I coped. It was like the stairs I ran at the hospital, up and down, and then I’d stop and sit, empty and mindless. I could not think about my children going without gifts at Christmas, but our lives were impossibly out of control. We had fallen into a dark hole due to no fault of my innocent children. At any moment they were going to lose their new baby sister. They were caught in the tidal wave of catastrophic illness when they needed a Santa most to give them hope. How would I explain to my children that Santa forgot them?
Perhaps, we will never know.
Tiny Titan, One Small Gift is Part 1 of the hard copy publishing of Tiny Titan, Journey of Hope, a Mom's Choice Award Winner for Best Adult Non-Fiction and carries a 5 Star Dove Award.
Download Tiny Titan, One Small Gift for Kindle here .
Available for FREE at Amazon.com
from Tuesday, December l8 through Saturday, December 22, 2012
Our gift to you this Holiday season.
Chapter 9
Christmas
I sunk into despair. The holiday was fast approaching and Christmas was the last thing on our minds with Becca critically ill in the PICU and everyone else sick too. There was no money for gifts, and there was no time to buy or make anything. I was sick, tired and depressed over the circumstances we found ourselves in. If the phone rang, I was afraid to answer it because it might carry the news that Becca was worsening or no longer here. The phone was a constant reminder of trouble. It rang with bill collectors waiting for money. It rang when medical personnel had more dreaded news or another crisis for Becca. My emotions rose and fell like tidal waves, up, up, up and down, down, down. I tried not to think; not thinking was how I coped. It was like the stairs I ran at the hospital, up and down, and then I’d stop and sit, empty and mindless. I could not think about my children going without gifts at Christmas, but our lives were impossibly out of control. We had fallen into a dark hole due to no fault of my innocent children. At any moment they were going to lose their new baby sister. They were caught in the tidal wave of catastrophic illness when they needed a Santa most to give them hope. How would I explain to my children that Santa forgot them?
I
was used to planning ahead and beginning in July bought two presents
each month to cover birthdays and Christmas. Over the years my frugal
plan had worked flawlessly. I squirreled away the hottest toys for
Christmas gifts with early season purchases. While other families were
school shopping I was making
wishes come true. It was a challenge to make my kids birthdays and
Christmas memorable. I love the holidays and I began to bargain shop for
Marissa’s September birthday gift. I budgeted a little each month until
Christmas, finding sale and clearance treasures, completing my shopping
race under budget. In November we celebrated Jim, Nathan and Ian’s
birthdays followed in December by Matt’s birthday, and then Kristy’s
birthday in early January. The gifts I bought with Jim’s carpet points
guaranteed the boys November birthday gifts. Matt at age three was easy;
all I needed was something big. Big for my little kids were exciting
and ten dollars went a long way. Other than that I had nothing. We had
already used the house payment money to pay for medicine, throat
cultures and doctors visits for the kids and me while we were sick.
I
was a rookie in the being broke game. I called Toys for Tots and
discovered I was too late. They quit accepting new registrations before
Thanksgiving. Luckily I remembered buried in the rafters, hidden from my
sneaky children I had one gift I had
purchased before things fell apart. Before Becca was born I had
purchased the new pirate ship Lego set that had caught Nathan’s eye. It
was an expensive present, and I could put both boys’ names on it. I had
already cut out doll clothes and a dance costume for Marissa, but the
fabric pieces remained on my closet shelf while I was sick. Now that
Marissa was home from kindergarten I would not be able to get the covert
sewing done, besides I was still too dizzy to sew my visions for
Marissa’s holiday present. My eyes were seeing double. We would share
dinner with relatives and I hoped I would have a dish to pass, but my
cupboards were as bare as Old Mother Hubbard’s. My head spun at the
thoughts of a hopeless Christmas and the room took another whirl;
exhausted I took some Benadryl and fell back to sleep.
While
I slept, Kristy took the picture of Becca from the fireplace and sat
alone in a quiet place to cry. It was something I never knew she did
until years later. People often think children don’t know what’s
happening but they are much more a part of the reality than the adults
realize. Kristy never complained and she protected us by caring for the
little ones and not adding to our burdens. I worried sometimes about how this would affect her in the future. Today, she tells me it was the substance that made her strong.
The
little elves in my family executed a Christmas plan. Kristy found the
Christmas tree in the garage, and she and Nathan, my mechanic, assembled
it. Ian and Marissa got busy cutting out paper snowflakes and hung them
with dental floss from the ceiling and windows. My little red and green
sewing pins stuck six stockings to the mantle. When I awoke, they
surprised me with their magical transformation. I had not lifted a
finger. They had carefully hung each of their hand made wooden, beaded
angel and needlework ornaments crafted by Jim’s parents. Hundreds of
hours of love radiated from the tree centered in a carpet of paper
snowflake snippets.
I
explained to them that Christmas was about family and being together
and sharing memories. What was going to be special about this Christmas
was that the Yurceks were a family. Christmas is about the baby in the
manger who brings hope to a dying world. Our baby was in the hospital
and all we had was hope. After spending seven days in bed, I was
regaining my strength.
Why
did I feel such shame that Santa might not come this year? I prayed,
“Oh Lord, How can I find gifts for Kristy, Marissa and Matt? It is
already December 23. How can I let my children down? How can I face Christmas morning empty handed? The kids’ baby sister is dying. They need something good to happen. Please don’t let their baby sister die at Christmas.”
My children were ready for Christmas. I was not. I couldn’t
expect my parents to shower my children with toys; they were struggling
with my dad’s recent unemployment. My parents blessed my children with
attention, but had no financial resources to give.
Becca
was transferred to the Pediatric Intensive Care Unit (PICU) just as I
had fallen ill. It had been a very long nine days and finally the kids
and I were well. I was healthy enough to see Becca and had been given
clearance to drive. I was no longer dizzy.
The
PICU had a circular desk, and different beds surrounded it. Off to the
side with glass doors were the isolation rooms. One of them housed my
Becca, who looked so tiny in the crib in such a big room. She was on
oxygen, and they explained to me that she kept forgetting to breathe due
to the RSV and pneumonia. The respiratory therapist gave her a
treatment to help clear her lungs. She had a blood staph infection, her
feedings were on hold, and they were giving her nutrition and fluid by
IV. Her heart was in failure. Merry Christmas was far from my thoughts.
Bah Humbug! This was not merry, not merry at all. I was dreading
Christmas and I was feeling like Ebenezer Scrooge.
Startled
out of my doldrums, Mary was standing in front of me saying hello. The
nurses had called her to let her know I had arrived. She had something
she needed me to sign. That’s all I had been doing, signing, and
waiting, and hoping, and praying. Bah Humbug!
She
took me to her office. I had no idea where her office was as she always
brought the paperwork to me. She opened the door and picked up a large
shopping bag. Her smile radiated. “Merry Christmas!” she exclaimed. The
nurses had shopped for families who would be without for the holidays.
They picked out a present for each one of my six kids. They even
purchased the batteries for the remote control car for Nathan. They
thought of everything. The bag contained a roll of wrapping paper, bows
and even the tape. It’s nooks and crannies were filled with little
treats – a box of candy canes and five chocolate Santa Clauses to peek
out of the top of the stockings. Miracles really do happen and my wish
had been granted. My kids would have Christmas.
Mary
told me that the hospital employees often play Santa for families to
make sure they would not face the holidays empty handed. She knew that
if I were skipping meals to feed the children, there would be nothing
for Christmas.
I
returned to Becca’s isolation room. She was much too sick to be held. I
savored a moment of calm and thankfulness. Slowly I was learning to
savor tiny moments of peace and tranquility. I stayed by her side
quietly reading before heading home with my miracle sack. I felt so
thankful for the graciousness of these kind people. With my ritual kiss
goodbye and whispering I love you, I prayed to her angels that she would
be here when I returned.
My
kids are notoriously nosy and I wanted to surprise them on Christmas
morning. I rushed off to pick up Matt and Marissa at Mom’s and stashed
the Christmas gifts before the older ones had a clue. While I had been
sick, Mom had been busy and blessed us with another surprise. She had
sewn Kristy and Marissa new Christmas dresses and my aunt had bought
sweaters for the three boys. All my five kids would have new matching
outfits to wear for Christmas.
Jim
closed the store early on Christmas Eve and helped me dress the little
kids for the Christmas Eve service. I told Jim my secret miracle and we
smiled eye messages across the heads of our stair step sized children
sitting between us in the church pew. We sang for the birth of baby
Jesus and our hearts cried out for a Christmas miracle for Becca. After
the service the kids played in the manger, Marissa and Matt rode the
lifelike donkey proclaiming they were on their way to Bethlehem while I
stared down at the tiny doll in the manger and said a quiet prayer for
my little baby lying so far away, all alone, in a bed in the PICU. We
needed hope in the midst of such incredible sorrow.
Mom
invited us for cake and ice cream after the service, but I had other
plans. Families are supposed to be together and I was not going to allow
Becca to be alone on Christmas. We all went to the hospital to visit
Becca, but only Kristy and I were
able to go to PICU. Jim stayed with the other kids in the lobby while
Kristy and I went to say Merry Christmas to Becca. Each child had made
Becca a card and the nurse taped the cards to the wall above her bed. I
hung Becca’s handmade stocking on the foot of her crib, putting on the
Christmas music Kristy had recorded. I made a special Christmas wish,
asking for a miracle for Becca. I left her again with a kiss on her
feverish cheek and wished her a Merry Christmas and a very blessed
goodnight. The walk from PICU to the lobby seemed endless, my heart
heavy laden with grief, babies should be home with mommies and daddies
on Christmas Eve.
Fresh
snow had fallen, and instead of hurrying home on the freeway we
meandered past the lighted mansions on Summit Avenue of St. Paul. We
passed the Cathedral and the Governor’s manor. The children marveled at
the beautifully decorated homes. Matt clapped his hands in joy, while
the others argued over which house was the favorite. Ian and Kristy
engaged in a competitive battle. Marissa’s face was lit up from the
wonder of the lights and its beauty. The kids were enjoying the ride so
much that we wound our way home through parks, and lakes, and
residential streets for over an hour. It was peaceful and calming. The
kids quieted and Matt fell asleep.
Scattered
snowflakes were falling and Jim and I listened to the Christmas music
playing from the radio. The radio DJ announced that Santa was spotted
circling the globe, and Marissa and Ian excitingly questioned how he
managed to get all the work done in one evening?
This
explanation I left to Jim, it was his turn to try to satisfy his
children’s curiosity. His eyes sparkled as he told them Santa was magic
and can make anything happen if you only believe. It was a heavenly
ride. I reached across the seat setting my hand on Jim’s knee. Jim’s
answer had satisfied the children’s curiosity, and Kristy had caught my
glare, playing along with the magic of the moment.
It
was nearly midnight when we arrived home and the house was pitch black
to save on electricity. As we pulled in the driveway, the mini van’s
lights shone upon dark shadows lying near the door. Jim hopped out of
the van to see what was going on. Then he summoned us as if it were
nothing.
As I reached in the back seat to get sleeping Matt, the children shrieked, “Santa came! He came! Santa was already here!”
What
were they talking about? I grabbed a confused, groggy Matt. There were
nearly a dozen or so thirty-gallon black trash bags left sitting by our
front door. Jim and the big kids carried in the bags.
The
children tore open the plastic bags to discover dozens of wrapped
presents with their names on them. It was blessed chaos. There were tons
of groceries, toilet paper, and shampoo. Everything we were out of. Kristy,
Nathan and Ian were stacking the packages by the tree while Marissa and
Matt played mountain climbers scaling the huge mounds of packages.
Kristy screamed as she caught the tree from falling. Marissa narrowly
escaped a plunge from the top of Gift Mountain. Our children were
bouncing off the walls, but we finally convinced them that it wasn’t
Christmas yet, and Santa required they open presents on Christmas
morning like in The Night Before Christmas. They didn’t argue because we
had just read the story.
Marissa
wondered why Santa left them outside, instead of bringing them down the
chimney. Ian, who always had an answer for everything, announced, “he
had so much dummy; if he brought the bags down the chimney, he would get
the chimney stopped up.” Kristy added “that the house was locked and he
could not bring them in the door.” Finally they all scampered off to
their rooms and soon were snuggled in beds dreaming of Christmas
miracles.
Shortly
after midnight the phone rang. It was the resident from PICU calling us
to let us know Becca had turned the corner and they upgraded her status
to stable. She was improving and was breathing easier so they had
removed the ventilator; Becca was now breathing on her own and on
supplemental oxygen! Becca was getting better! My Christmas prayers had
been answered. And someone, some Santa somewhere had fulfilled my
wishes. He or she arrived with bags of toys, and goodies, and groceries.
My cupboards would no longer be bare. Jim and I had no means to provide
for our family, yet someone, somewhere, knew our needs. I thanked the
baby in the manger for this Christmas miracle.
Jim
and I put away the much-needed groceries. Two turkeys, packages of
hamburger and chicken went into the freezer. We put the canned goods on
the shelves . . .apples and oranges, carrots and potatoes, and onions . .
. bathroom and hygiene products. There were even a couple loaves of
expensive rice bread. Whoever brought this Christmas miracle, had not
forgotten anything. They had even picked up a double pack of diapers for
Matt who was regressing from his potty training in his upside down
life.
The
real Christmas miracles were hidden in the tiny details. Buried deep in
one of the bags I discovered a brand new pair of much needed white
Reebok tennis shoes for me. They fit perfectly. We filled the stockings
with candy and small gifts from the bags the kids had not seen. With the
gifts from the hospital and the one from us for Nathan and Ian, we had
more presents than we had ever imagined. Our room looked like a
Hollywood movie Christmas morning scene. Where did all this come from?
Jim
and I crawled into bed, hoping to get a few hours of sleep before the
kids scrambled upon us to open their presents. They were tired from the
late night and for the first time ever on Christmas morning; they slept
until 8:00 A.M..
Kristy
in her sweats and the little ones in their blanketed sleepers tore into
the pile of packages. One, two, three, four, five, six, seven, I lost
count of the gifts they each received. Nathan screamed pulling out a
pair of roller blades, the current hottest trend retailing at $l50 a
pair. Who had done this? Ian soon discovered he had a pair too! Kristy
found a boom box, a jewelry box, curling iron and music to play.
Packages marked to the Yurcek family contained a VCR to replace the one
that had been stolen when our house had been robbed and ransacked right
before Becca’s birth. There were movies, games, books, colored markers,
and art kits for each child. Even Becca was not forgotten. She got new
clothes, a diaper bag, several new pink animals and more music. Marissa
found a big package with a dollhouse and furniture. She was surrounded
in pink heaven. Matt tunneled and laughed through the wrapping paper and
boxes. We corralled him to open his presents, a big floppy eared dog,
trucks, cars and a train track. The boys tried to set up their new
remote control car racing set in the middle of the wrapping mess.
Jim
was not to be forgotten and he discovered new socks, sweats, jeans and a
belt. He handed me a tiny box from under the tree that he discovered
while we were cleaning up and making sure all the tiny toy pieces were
not thrown away with the mountain of boxes and wrapping paper. Inside
was a solid sterling silver heart necklace with six tiny stones. The
necklace was a reminder of hope, a mother’s heart with my six precious
children. The six little diamonds sparkled in rainbow colors from our
Christmas tree. It was bittersweet to look at as Becca’s heart was
slowly failing. But I reminded myself that for today Becca was doing
better, and this Christmas we had witnessed a true miracle. Some unknown
Santa with a caring heart had done all this for us. But who, how, when?
No
longer were our cupboards bare. The kids and I made a fresh fruit salad
with real whipped cream. Kristy peeled the apples and Nathan chopped
them along with slicing frozen strawberries. Marissa cut banana coins
with a bread knife and Ian added one handful of marshmallows to his
mouth before adding the next handful to the magical miracle bowl of
Christmas fruit.
We
dressed for Christmas dinner at my cousins. The family celebrated the
day together with aunts and uncles, cousins and second cousins. All were
there but one, our Becca.
No
longer would we be hungry again. We had food for the next month until
our food stamp case opened. The kids had new toys to keep them occupied.
We had warm clothing and mittens. I later discovered when our bills
arrived, that some unknown Santa paid our phone bill, the utility bills,
and our car insurance! We will be forever grateful for the gifts of
that year, and we will never forget we witnessed a true Christmas
miracle. I have from then on remembered to give back to others as you
did for us. Thank you! What you did for us that year was unbelievable!
You gave us the gift of hope and belief in miracles.
Buried
in one of the bags of the hundreds of dollars in gifts we found a card,
wishing us a “Merry Christmas and to all, and to all a good night. You
are loved! Santa.”
Those were the same words whispered in tiny Becca’s ear ten days earlier. Was it connected?
Over
the next few years, the miracles continued helping us when we needed it
most. I tried to find who our anonymous Santa was but we never
discovered the giver of the gifts. Whoever it was did not want to be
found out. Maybe someday that person or persons will read my writing,
and I will finally be able to thank her or him for our Christmas miracle
and generosity.
Perhaps, we will never know.
Tiny Titan, One Small Gift is Part 1 of the hard copy publishing of Tiny Titan, Journey of Hope, a Mom's Choice Award Winner for Best Adult Non-Fiction and carries a 5 Star Dove Award.
Learn More about Noonan Syndrome and other Rasopathy Spectrum Disorders
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